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Although his work and family keep him going, the reality of his situation sometimes becomes unbearable, Desikan said.

\"The loss of the relationship with my sons is the hardest thing, hand down,\" he said. \"I just want one hour.\"

\"It's the hardest thing to get out of bed every morning. My wife and kids give me the courage to fight,\" Desikan added. \"I love my work because it makes me feel alive and gives me purpose. I want to really, really beat ALS and this keeps me going.\"

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