0:59
- family
- July 27, 2020
Baby with brittle bone disease beats the odds
At first, doctors didn't know if Jackson would survive.
View this post on InstagramA post shared by Abby Storey (@andsothestoreybegins) on May 10, 2020 at 10:20am PDT
\"They immediately took him and worked on him,\" Storey said. \"He was stable and they were taking him to the NICU, so my husband went with them and stayed in contact with me.\"
Storey held her son one week after he was born. Jackson had countless fractures in his arms, legs and ribs from the birth and handling.
View this post on InstagramA post shared by Abby Storey (@andsothestoreybegins) on Jul 3, 2020 at 1:14pm PDT
After eight weeks, Jackson went home.
\"He really doesn't cry very often unless he has a fracture -- even with that, his demeanor is calm and sweet,\" Storey said. \"He knows how to move his body for you. You have to pick him up a certain way, very flat, broad ... he will lift his shoulders so you can get underneath him. It's wild how smart he is. You can see it in his eyes.\"
View this post on InstagramA post shared by Abby Storey (@andsothestoreybegins) on Jul 26, 2020 at 9:37am PDT
Storey said Jackson has been enjoying life with big sister Brooklyn, 3.
Now, Storey shares Jackson's journey on her Instagram page and blog, And So the Storey Begins.
\"There's a lack of representation in that world. Disability is a wide spectrum, but specifically for OI,\" Storey said.
View this post on InstagramA post shared by Abby Storey (@andsothestoreybegins) on Jul 16, 2020 at 7:20pm PDT
Storey said she's been connecting with others who have OI, and parents of children who have OI. Her goal is to raise awareness, she said.
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