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\"We could have had a lot more education, and people need education,\" said Libby Boyce. \"We're glad that Cameron is bringing this to the world, for people who have epilepsy to go check with their doctor and be more assertive and ask them for information. … It's a very serious disease.\"

\"PHOTO:
ABC News
PHOTO: Libby Boyce and Victor Boyce, parents of the late Disney star, Cameron Boyce. speak out with senior director of the SUDEP institute, Sally Schaeffer, about a new PSA about sudden unexpected death in epilepsy awareness.
>

Victor and Libby have teamed up with Sally Schaeffer, the Institute Director for SUDEP, who also lost her 7-year-old daughter five years ago after she suffered a rare form of epilepsy in her sleep.

\"I am a mom who lost my little girl, and I'm ... I'm mad,\" Schaeffer told \"Good Morning America.\" \"I'm mad and I'm angry 'cause I don't have her here anymore, and I live with that every single day.\"

Like the Boyces, Schaeffer never imagined losing her daughter to SUDEP.

\"There's times I still hold so much guilt that what else could I have done? What else could I have done or should have done?\" she said.

So Schaeffer helped bring awareness about the disease through the SUDEP institute. When Schaeffer heard about Cameron's story, it resonated with her and she reached out to the Cameron Boyce Foundation that Victor and Libby began after Cameron's death.

\"As I told Victor and Libby when we met, it is so sad why we're all sitting here,\" Schaeffer said. \"But taking Cameron's legacy and bringing this awareness is going to move mountains. I truly believe it's going to move mountains in terms of awareness of epilepsy and definitely SUDEP.\"

Since Victor and Libby started the Cameron Boyce Foundation in August, they've learned that more people are going to their physician's offices actively seeking education and awareness about epilepsy.

They hope that their new partnership with the Epilepsy Foundation SUDEP Institute will raise more awareness.

\"We want to shine more light on epilepsy, get more funding, get more research, get more people involved,\" Victor added. \"And we hope that Cameron's reach can do that.\"

\"PHOTO:
http://knowsudepnow.org/
PHOTO: http://knowsudepnow.org/
>

Learn more about K(NO)W SUDEP NOW – an initiative to bring awareness and to end sudden unexpected death in epilepsy -- here.

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