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Samples has been sharing Locklan’s story and photos on Instagram since his diagnosis, In a post from October, she wrote that she wanted to do so in part “to spread some joy on the internet!”

“Our biggest message is to celebrate what makes you stand out and what makes you different and hopefully bring awareness to this uncombable hair syndrome and hopefully, we can get more information,” Samples said. “If you think your kid might have it, go inquire and ask questions and be your child's advocate.”

There are no formal treatments for uncombable hair syndrome and the hair abnormalities tend to resolve themselves as time goes on.

“Interestingly, this condition does get better with age. So after puberty or into adulthood, typically the hair condition does get better,” Dr. Cheng noted. “It doesn't stay with them for their entire life.”

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